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My story

Jan Habásko — Tue, 01 Mar 2016 18:47:24 +0000

I had never heard about myocarditis and I had had no idea that this disease exists until 05/2014. I felt good even in the afternoon. However, in the evening I had started to feel really exhausted. In the middle of the night, fever over 39 ºC (102 ºF) and joint pain had appeared. The other day I had suddenly a chest pain. My paediatrician examined me and for sure send me to ENT physician who prescribed me antibiotics, because my CRP was increased, but the general picture of my state of health was quite unclear. The next morning, an unbearable chest pain had woken me up. It did not stop in any position. My mum had called me an ambulance. In children emergency, they had said us after two hours that I had a higher level of troponin and that they had a suspect of acute myocarditis. The transport in cardiology for other examination and X-ray followed and then I had been placed in bed and connected to a monitor. Even in that time I thought that I would be able to be at school for my math test the other day. However, my physician opened my eyes very quickly. Absolute rest in the bed, just relaxing, no stress. I could leave my bed only twice per a day for hygiene. The biggest adventure in the following ten days was everyday “trip” with wheelchair in cardiology to make ECHO and ECG.

After the discharge, a long convalescence, regular check-ups in cardiology, Holter monitoring, rest and small walks had come after. Luckily, summer holidays had come very soon, so I had a plenty of time for rest and healing. Step by step, I had forgotten about myocarditis and I had had no idea that I could meet with this diagnosis even in another time.

Another summer holidays had come and again in the rest regime, because I had fallen from stairs and bruised my leg the last week of the school year. Few days before the end of holidays, I had felt again in the evening tired and it seemed to me that I had a strange “inner heat”. At 4 am, a chest pain had woken me up and I had had a short of breath. We had called an ambulance again. They were not very willing, but eventually they had decided to take me to the hospital. An hour later we had found out that I had again increased level of troponin, meanwhile just a little bit. So, for me a good known “trip” in cardiology and in a bed with a monitor had followed. I had a suspect that it was going to be another myocarditis, but it did not occur to me anyway that it was going to pick up such speed. I had strong and unbearable chest pain in the night. The following day in the morning, troponin level was 8,8 and the day after 9,6. They had transported me closer to the cardio centre, just for sure. I did not protest, because there was an air condition, a better bad and good TV. That time I had undergone cardiac magnetic resonance, where the diagnosis of myocarditis was confirmed and it also showed an oedema of the left ventricle.

I had lucky in both cases and I believe that I have helped this a lot with truly strict observance of the rest regime and instructions of my physicians. I have managed both myocarditis without a damage to the heart function. I will be permanently observed in cardiology, I will have some restrictions for the rest of my life, however, I have a chance that other myocarditis will not come and that I will be able to live a normal life, study medicine and become a physician.

Příspěvek My story pochází z Myokarditida

Dictionary

Jan Habásko — Tue, 01 Mar 2016 11:30:26 +0000

ENGLISH TRANSLATION UNDER CONSTRUCTION.

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Příspěvek Dictionary pochází z Myokarditida

Warning

Jan Habásko — Wed, 20 Jan 2016 20:21:26 +0000

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About project

Jan Habásko — Wed, 20 Jan 2016 20:19:35 +0000

Dear visitors,

Welcome to the website www.myokarditida.cz,

My name is Jan Habásko and I am the founder and administrator of this web handbook designed for patients with diagnosis of myocarditis and their families and relatives. I am a student of 1st Medical School of Charles University in Prague and former student of Jan Neruda Grammar School in Prague in the Czech Republic and had myocarditis myself. Therefore I know your situation very well and also your feelings.

During my research about myocarditis on the Internet, I have discovered lots of medical articles, many of which are not a suitable resource for people who are not experienced in biology and medicine. On the contrary, they can be terrified by the number of medical terms and statistics. Or I have found websites with discussion by laymen, where the information could be formulated incorrectly. I did not find any website with intelligible and well-arranged information about myocarditis in Czech language – what is my disease, discussing what I should expect in the future and so on.

Of course, I wanted to get to know my disease as thoroughly as possible and therefore I have studied a huge amount of medical articles and books and after consultations with medical doctors and my relatives have decided to share my findings about myocarditis. To this end, I determined to create a handbook for other patients and their families. I will do my best to present everything as intelligible and clearly as possible covering issues such as what is myocarditis, what kind of treatments exist and other information associated with this disease.

Furthermore, I will present on these websites stories of other patients with myocarditis and news from existing and ongoing medical research. Furthermore, a section names What do the Doctors Say? is filled with interviews with experts from cardiology, immunology and imaging methods, who deal with the diagnostics and treatment of myocarditis.

Naturally, I did not create this project alone, and therefore I would like to express my thanks here to people who shielded and supported the projects and invested their free time in this project and controlled it professionally. My big thanks belong to these people:

Chief of my project:

Mgr. Štěpán Mička – Grammar School of Jan Neruda, Prague

Lucie Šedivá M.D., Ph.D. – Chief of antiarrhythmic department of Hospital Na Homolce

Consultants:

Petr Kuchynka M.D., Ph.D., associate professor – 2nd Department of Medicine-Department of Cardiovascular Medicine of 1st Medical School and General University Hospital in Prague

Tomáš Paleček M.D., Ph.D., professor – 2nd Department of Medicine-Department of Cardiovascular Medicine of 1st Medical School and General University Hospital in Prague

René Čamek M.D. – Chief of cardiologist and internal department of The Institute of preventive and sports medical science spol. s.r.o.

Veronika Stará M.D. – Cardiologist doctor office of Pediatric Clinic of 2^nd Medical School and Motol Hospital

Radana Zachová M.D. – Institute of Immunology of 2^nd Medical School and Motol Hospital

Theodor Adla M.D. – Clinic of Imaging methods of 2^nd Medical School and Motol Hospital

Pavel Štursa M.D. – Department of Radiology of Na Homolce Hospital

Many thanks for articles and inspiration:

Leslie T. Cooper, Jr., M.D., Professor of Medicine – Vascular Centre a Department of Cardiovascular Diseases Mayo Clinic

My heartfelt thanks go also to the company SVĚT IT s.r.o. for free administration of web hosting and the domain and for graphic adjustment of the websites. Many thanks for the correction and consultations with the English translation belong to B. Ed. Wayne Smith (Gymnázium Jana Nerudy) and Mgr. Renáta Rejmíšová (Gymnázium Jana Nerudy). For the correction of the work I thank to PhDr. Blanka Nápravníková (Gymnázium Jana Nerudy) and PhDr. Věra Radváková, Ph.D. (Gymnázium Jana Nerudy and VŠE).

And last but not least I thank my parents for help and support.

I hope that you will find all information you are looking for and that these websites will give you at least a small help in your situation.

Jan Habásko

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Symptoms

Jan Habásko — Tue, 19 Jan 2016 14:21:50 +0000

Symptoms are different and individual for each patient with myocarditis. Most of the first symptoms are preceded by previous infectious disease, mostly of the respiratory system or alimentary canal. Symptoms, which are observed by patient, are mostly “flu-like” symptoms. They can have even unusually quick onset:

Nausea, lack of appetite
Vomiting
Paleness and sweeting
Fever or running temperature
Muscles and joints pain (myalgia and arthralgia)
Fatigue
Rash
Swellings around ankles, swellings of gaskin

These symptoms are mostly accompanied with shortness of breath (dyspnoea), which can be associated with position, and which can be accompanied with vertigo. Mostly, breathing is worsen by chest pain. Half of patients has also experience of palpitation or irregular heart rhythm. A third of patients also complain of chest pain, specifically behind the sternum and nearby. The chest pain is sharp, spiked, stinging and creasy (my personal experience – imagine that something is compressing your lungs and makes your breathing worse and simultaneously it is pressing your heart and digging nails in it). The symptoms, including the chest pain, may – but may not – resemble a heart attack.

Author of the opening picture: Patrick J. Lynch

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